Wednesday, August 15, 2012

Day 60


We are pretty much just hanging out until Anya has surgery on Friday. The vent is down a little, but they really won’t work on weaning it until after the surgery. Tonight we spoke to Ana, one of the fellows, and she said they might consider another step in weaning her off the vent. I don’t remember the name exactly, but it uses a mask and can have some additional support that is not possible with c-pap. Anya was exchanging air wonderfully just before she crashed the other night, so she definitely has the lungs capacity to breathe for herself, she just needs more reserve. Vent to c-pap may be too dramatic of a change for her; she needs more conditioning before she can do so much work. It is like running a marathon without any training; you may do OK for a few minutes, but not very long.

I tried to hold her for a while today only to put her back after a few minutes. She just isn’t comfortable being held, especially when she in on the vent. She was wide awake and comfortable when lying in bed, when I started to hold her she was irritable and struggled to get comfortable. I think the intubation tube irritates her, gagging her so she can’t relax. It also seems like it is harder for her to breathe when being held.  It is sad not to hold her, but it is much sadder to hold her knowing she would be more comfortable lying in bed. As soon as she was back in bed she was more comfortable and had the energy to look at me instead of just breathing.

Anxious to get the surgery over, hopeful that it will be a big piece of the puzzle.

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