Her o2 sats looked good but she was very pale. It was a
really hard couple of hours, I was filled with doubt. The issue is she could
either be irritated because of the c-pap and she was using up energy fighting
it, or she wasn’t getting oxygen as she should and so was irritated. It can be
really difficult to know which it is. Her nurse covered me so I could go eat
and when I came back she looked a lot better: she had been sucking on her nurse’s
finger, and had been very content. I let her suck on my finger and after a
while she looked a lot pinker, more normal. Then she became the calm baby I know
and looked around, tried talking a little, and had a good time staring at her
toys.
Because she was acting so normal I feel a lot better. If she
was worn out from breathing on her own she would not have the energy to do
that. After Adam got off work she got a little irritable at times but we left
her sleeping at change of shift. I hope she sleeps some tonight; she needed
almost complete one on one care all day.
I am cautiously optimistic. We have been burned before so I do
not want to set my hopes on anything. The hardest part of this stage is seeing
her so uncomfortable and knowing she is just so close to getting where she needs
to be. Her feeds continued today; since she is tolerating them well she was
taken off her lipids, part of her IV nutrition. Soon enough she will get off
the other part, the electrolytes. Then she will get off her pain med, and then
we will be IV free other than the push meds that are given quickly. Another one
of the monitoring devices was taken off today. Little by little we are getting
our girl, but until she can get her lungs working better home seems very far
away.
Praying for Anya to keep her energy up!
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