Dr. Kays reviewed her MRI, cardiac echo, and her chest x-ray
with me. As he had prepared us, her MRI is not normal, but not all that bad.
Her brain is smaller than it should be, but there is no other abnormality. A lot
of this is caused by the ECMO. Dr. Kays expects she will have some delays but
nothing that cannot be overcome; she may just achieve some milestones later
than a normal baby. The echo looked pretty good as well, she has a small hole
between two of the chambers of her heart, and this is something that is open in
the womb but closes later. It may be an issue in the future but will probably
close on its own. The x-ray showed a little more fluid on the left side of her
chest than he would like, and her heart has not shifted as much either, however
his main focus is how she is breathing and he is happy with that.
It sounds like the earliest she will be discharged is Tuesday.
The central line will be taken out next week. The goals are working on feeding
and hoping that all of the medical suppliers line up well. I have been working
with our family pediatrician and the group from Children’s to coordinate Anya’s
care when we leave. When we go to the pediatrician’s office I plan on requesting
that all the doctors and staff come in and meet Anya. Anya’s breathing is so
fast that at first glance she looks like she is in distress, until you look
closer and realize in every other sign shows she is not. I want them to know
her baseline.
So I suppose we can set the countdown: estimated seven days
to go!
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