Nothing much changed today, Anya was quieter. She was still
overstimulated by simple care like diaper changes so we didn’t visit much again
today. By the evening she was a lot calmer and all her numbers are looking well.
She is kind of puffy; hopefully tomorrow they will start back on diuretics. Right
now I just want to support whatever she needs to keep the ECMO stable so she
can get off of it as soon as she is able. I had a good conversation with her nurse
today that made me feel more confident about leaving her; I was only visiting
for a few hours a day but was worried I would miss something if I didn’t come
more often. More peace today and praying that a few more days on ECMO makes a
big difference, and that she can go a few more days without a circuit change.
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